Today marks 100 days in the hospital for 2019. (actually 101 because an ER only visit was not recorded.) Honestly, it feels disheartening to have reached a negative milestone. I know the exact numbers don’t have specific meaning but the accumulation of 100 days when we still have 2.5 months left in the year just… Continue reading 100

Four Years

Thanks, Facebook!  Four years ago, on March 6th (yeah, I know I’m a little late – I have excuses) I started receiving formula through a feeding tube. This was a huge step for me, and my doctors. Don’t get me wrong, I never “wanted” a feeding tube or formula instead of eating but I knew… Continue reading Four Years