(This is a piece for my church in the season of Advent) As you can probably guess, so much of my time is spent waiting: for a doctor visit inside or outside the hospital, for a bed in the ER, for a bed in the hospital, for the nurse to bring medicine, for the medicine… Continue reading On Waiting
The topic of isolation & loneliness has come up quite a bit in the past week. There is isolation in chronic illness, not working/working remotely, changing your career path, living alone, etc. Some new friends & I discussed it at a conference on non-clinical work for physicians. One of my favorite podcasters (Laura McClellan) recorded… Continue reading Am I not alone?
Today marks 100 days in the hospital for 2019. (actually 101 because an ER only visit was not recorded.) Honestly, it feels disheartening to have reached a negative milestone. I know the exact numbers don’t have specific meaning but the accumulation of 100 days when we still have 2.5 months left in the year just… Continue reading 100
Hey y’all! I know I’ve been slacking with my writing. I want to share my understanding of hope from my circumstances. Hold me accountable to write. You have my permission to lay on the pressure 🙂 Just don’t be too mean. On Wednesday I had a port placed in my right chest. It became an… Continue reading Update: 25 July 2019
Hi y’all! I’m unfortunately back in the hospital for the same symptoms of nausea/vomiting and abdominal pain. I was discharged April 8, returned April 14 – after a late night (1am) call to my parents. I really appreciate all that my parents do for me: carrying bags & boxes up & down the stairs, answer… Continue reading Update: 16 April 2019
Hi All (friends & family)! Sadly, I am readmitted to the hospital in Wilmington. (NHRMC) for intractable nausea & vomiting which started last night & did not relent. We (mom & I) arrived here around 3am Tuesday morning. I had managed 11 days out of the hospital. This is hard: The gastroenterology (GI) specialists are… Continue reading Update: 2 April 2019
Thanks, Facebook! Four years ago, on March 6th (yeah, I know I’m a little late – I have excuses) I started receiving formula through a feeding tube. This was a huge step for me, and my doctors. Don’t get me wrong, I never “wanted” a feeding tube or formula instead of eating but I knew… Continue reading Four Years